The patients’ preferences in breaking bad news: A scoping review
,
Abstract
Background & Aim: Patients’ preferences in breaking bad news to the patients may vary from one culture and society to another. This study aimed to determine patients' preferences for breaking bad news.
Methods & Materials: This scoping review study was conducted on the articles published in databases, including Scopus, Web of Science, Proquest, Embase, and Medline (PubMed) up to the end of December 2023. After removing the duplicate results. The titles and abstracts of the articles were reviewed to observe the probable connections with the review question, and the unrelated items were omitted. The original articles, which were published in English entered into the study. The articles that have reported patients’ preferences in emergency settings or parents’ preferences for breaking bad news, were excluded from the study. The textual data were extracted from the remaining articles and then analyzed using conventional content analysis.
Results: Fifty-nine studies included in this review about the patients’ preferences were classified into four categories: “the right to know what is happening to them”, “receiving emotional support”, “participating in decision-making”, and “observing the requirements of giving the bad news to the patients”. Nonetheless, there were variations in patients' preferences among different backgrounds.
Conclusion: Given the influence of the patient’s background in breaking bad news, the existing solutions in Western communities may not be practical or completely useful for Eastern. The results of this study can be used to observe patients’ preferences in breaking bad news from different backgrounds.
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2. Buckman R. Breaking bad news: why is it still so difficult? British Medical Journal (Clinical research ed.). 1984 May 5; 288(6430): 1597-99.
3. Warnock C, Tod A, Foster J, Soreny C. Breaking bad news in inpatient clinical settings: role of the nurse. Journal of Advanced Nursing. 2010 Jul; 66(7): 1543-55.
4. Gilbey P. Qualitative analysis of parents’ experience with receiving the news of the detection of their child's hearing loss. International Journal of Pediatric Otorhinolaryngology. 2010 Mar 1; 74(3): 265-70.
5. Mori M, Lin CP, Cheng SY, Suh SY, Takenouchi S, Ng R, et al. Communication in cancer care in Asia: A narrative review. JCO Global Oncology. 2023; 9: e2200266.
6. Zahedi F, Larijani B. Truth telling across cultures: Islamic perspectives. Iranian Journal of Medical Ethics and History of Medicine. 2010 Dec 10; 3(5) :1-11.
7. Gold M. Is honesty always the best policy? Ethical aspects of truth-telling. Internal Medicine Journal. 2004 Sep; 34(9-10): 578-80.
8. Giger JN, Davidhizar R. Transcultural nursing assessment: a method for advancing nursing practice. International Nursing Review. 1990 Jan 1;37(1):199-202.
9. Khalil RB. Attitudes, beliefs, and perceptions regarding truth disclosure of cancer-related information in the Middle East: A review. Palliative & Supportive Care 2013 Feb; 11(1): 69-78.
10. Fujimori M, Parker PA, Akechi T, Sakano Y, Baile WF, Uchitomi Y. Japanese cancer patients' communication style preferences when receiving bad news. Psycho‐Oncology: Journal of the Psychological, Social and Behavioral Dimensions of Cancer. 2007 Jul; 16(7): 617-25.
11. Abazari P, Taleghani F, Hematti S, Ehsani M. Exploring perceptions and preferences of patients, families, physicians, and nurses regarding cancer disclosure: A descriptive qualitative study. Supportive Care in Cancer. 2016 Nov; 24(11):4651-9.
12. Tricco AC, Lillie E, Zarin W, O'Brien KK, Colquhoun H, Levac D, et al. PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and explanation. Annals of Internal Medicine. 2018 Oct 2; 169(7): 467-73.
13. Arksey H and O'Malley L. Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology. 2005 Feb 1; 8(1): 19-32.
14. Mayring P. Qualitative content analysis: A step-by-step guide. SAGE Publications Ltd. Nov 3, 2021.
15. Quadrelli S, Jordan P, Heres M, Belli LF, Ruhl N, Colt H. Examining patients' preferences for participation in clinical decision‐making: The experience in a Latin American chronic obstructive pulmonary disease and cancer outpatient population. Internal Medicine Journal. 2014; 44(3): 281-87.
16. Pinto RN, Chaves AC, Lourenço MT, de Jesus Mari J. Information needs of recently diagnosed cancer patients in Brazil. The International Journal of Psychiatry in Medicine. 2004 Dec; 34(4):319-29.
17. Doumit MA, Abu-Saad HH. Lebanese cancer patients: Communication and truth-telling preferences. Contemp Nurse 2008; 28(1-2): 74-82.
18. Parker PA, Baile WF, de Moor C, Lenzi R, Kudelka AP, Cohen L. Breaking bad news about cancer: patients’ preferences for communication. Journal of Clinical Oncology. 2001 Apr 1; 19(7): 2049-56.
19. Cassileth BR, Zupkis RV, Sutton-Smith K, March V. Information and participation preferences among cancer patients. Annals of Internal Medicine. 1980 Jun; 92(6): 832-6.
20. Beqiri A, Toci E, Sallaku A, Qirjako G, Burazeri G. Breaking bad news in a Southeast European population: A survey among cancer patients in Albania. Journal of Palliative Medicine. 2012 Oct 1; 15(10):1100-5.
21. Hagerty RG, Butow PN, Ellis PM, Lobb EA, Pendlebury SC, Leighl N, et al. Communicating with realism and hope: incurable cancer patients' views on the disclosure of prognosis. Journal of Clinical Oncology. 2005 Feb 20; 23(6): 1278-88.
22. Chen SY, Wang HM, Tang WR. The differences in preference for truth-telling of patients with cancer of different genders. Cancer Nursing. 2018 Jul 1; 41(4): 320-6.
23. Arbabi M, Rozdar A, Taher M, Shirzad M, Arjmand M, Ansari S, et al. Patients’ preference to hear cancer diagnosis. Iranian Journal of Psychiatry. 2014 Mar; 9(1): 8-13.
24. Al-Amri AM. Saudi cancer patients’ attitudes towards disclosure of cancer information. Middle East Journal of Cancer. 2010; 1(4): 175-180.
25. Sardell AN, Trierweiler SJ. Disclosing the cancer diagnosis. Procedures that influence patient hopefulness. Cancer. 1993 Dec 1; 72(11): 3355-65.
26. Fan Z, Chen L, Meng L, Jiang H, Zhao Q, Zhang L, et al. Preference of cancer patients and family members regarding delivery of bad news and differences in clinical practice among medical staff. Supportive Care in Cancer. 2019 Feb; 27(2): 583-9.
27. Davison BJ, Parker PA and Goldenberg SL. Patients’ preferences for communicating a prostate cancer diagnosis and participating in medical decision‐making. BJU International. 2004 Jan; 93(1): 47-51.
28. Chiu LQ, Lee WS, Gao F, Parker PA, Ng GY, Toh CK. Cancer patients’ preferences for communication of unfavourable news: An Asian perspective. Supportive Care in Cancer. 2006 Aug; 14(8): 818-24.
29. Lee GL, Teo I, Kanesvaran R. The complexities of doctor–patient–family communication in an Asian oncology setting: concordance and discordance among patient preferences, family preferences, and perceived and actual communication. Health Communication. 2018 Feb 1; 33(2): 95-101.
30. Wei S, Chen F, Chen H, Guo Y, Hui D, Yennurajalingam S, et al. Patients’ and family members’ decision-making and information disclosure preferences in a single-center survey in China: A pilot study. American Journal of Hospice and Palliative Medicine®. 2016 Sep; 33(8): 733-41.
31. Benson J, Britten N. Respecting the autonomy of cancer patients when talking with their families: qualitative analysis of semistructured interviews with patients. BMJ. 1996 Sep 21; 313(7059): 729-31.
32. Adeleye AO, Fatiregun AA. Is breaking of bad news indeed unacceptable to native A fricans? A cross‐sectional survey of patients in a Nigerian neurosurgical service. Acta Neurologica Scandinavica. 2013 Mar; 127(3): 175-80.
33. Rao A, Ekstrand M, Heylen E, Raju G, Shet A. Breaking bad news: Patient preferences and the role of family members when delivering a cancer diagnosis. Asian Pacific Journal of Cancer Prevention. 2016 Apr 1; 17(4): 1779-84.
34. Sobczak K, Leoniuk K, Janaszczyk A. Delivering bad news: patient’s perspective and opinions. Patient Preference and Adherence. 2018 Nov 12; 12: 2397-404.
35. Kpanake L, Igier V, Sastre MT. Cultural differences in perceived appropriateness of breaking bad news to patients: A direct comparison of Togo and France. Universitas Psychologica. 2019; 18(2): 1-7.
36. Tse CY, Chong A, Fok SY. Breaking bad news: a Chinese perspective. Palliative Medicine. 2003 Jun; 17(4): 339-43.
37. Fujimori M, Akechi T, Akizuki N, Okamura M, Oba A, Sakano Y, et al. Good communication with patients receiving bad news about cancer in Japan. Psycho‐Oncology: Journal of the Psychological, Social and Behavioral Dimensions of Cancer. 2005 Dec; 14(12): 1043-51.
38. Goebel S, Mehdorn HM. Breaking bad news to patients with intracranial tumors: the patients' perspective. World Neurosurgery. 2018 Oct 1; 118:e254-62.
39. Farhadfar AH, Nasiripour AA, Haji Nabi K. A Comprehensive Review of Patient-Centered Care in the Hospitals. Journal of Healtcare Management. 2019; 9(4): 91-8.
40. Delaney LJ. Patient-centred care as an approach to improving health care in Australia. Collegian 2018 Feb 1; 25(1): 119-23.
41. Robb G, Seddon M. Quality improvement in New Zealand healthcare. Part 6: keeping the patient front and centre to improve healthcare quality. The New Zealand Medical Journal (Online). 2006 Sep 22;119(1242): 1-9.
42. Baile WF, Buckman R, Lenzi R, Glober G, Beale EA, Kudelka AP. SPIKES—a six-step protocol for delivering bad news: application to the patient with cancer. The oncologist. 2000 Aug 1;5(4):302-11.
43. Rabow MW, McPhee SJ. Beyond breaking bad news: how to help patients who suffer. Western Journal of Medicine.1999; 171(4): 260-3.
44. Nardi TJ, Keefe-Cooperman K. Communicating bad news: a model for emergency mental health helpers. International Journal of Emergency Mental Health. 2006; 8(3): 203-7.
45. Narayanan V, Bista B, Koshy C. 'BREAKS' protocol for breaking bad news. Indian Journal of Palliative Care. 2010; 16(2): 61-5.
46. LoboPrabhu S, Molinari V, Pate J, Lomax J. The after-death call to family members: A clinical perspective. Aging & Mental Health. 2007 Mar 1;11(2):192-6.
47. Kazemi A, Pursoleimani A, Fakhari A, Madaen K. Truth-telling in medicine: views of Tabriz University of Medical Sciences. Iranian Journal of Medical Ethics and History of Medicine. 2010 Apr 10; 3(2): 54-63.
48. Deschepper R, Bernheim JL, Vander Stichele R, Van den Block L, Michiels E, Van Der Kelen G, et al. Truth-telling at the end of life: a pilot study on the perspective of patients and professional caregivers. Patient Education and Counseling. 2008 Apr 1; 71(1):52-6.
49. Friedrichsen MJ, Strang PM, Carlsson ME. Breaking bad news in the transition from curative to palliative cancer care–patient's view of the doctor giving the information. Supportive Care in Cancer. 2000 Nov; 8(6): 472-8.
50. Farhat F, Othman A, El Baba G, Kattan J. Revealing a cancer diagnosis to patients: attitudes of patients, families, friends, nurses, and physicians in Lebanon—results of a cross-sectional study. Current Oncology. 2015 Aug; 22(4): 264-72.
51. Ibn Ahmadi A, Heydari N. Is there a proper method of truth telling? Iranian Journal of Medical Ethics and History of Medicine. 2010 Apr 10; 3(2): 16-28.
52. Agamohammadi M, Alefbaei A, Babaei F, Biazar N, Gardashkhani S. The attitude of patients and families toward the delivery of bad news in oncology wards. Nursing and Midwifery Journal. 2020 Jan 10;17(12):955-64.
53. Parsa M, Bagheri A, Larijani B. Telling bad news and its various aspects. Iranian Journal of Medical Ethics and History of Medicine.2011; 4(6): 1-14.
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| Files | ||
| Issue | Vol 11 No 2 (2024): Spring | |
| Section | Review Article(s) | |
| DOI | https://doi.org/10.18502/npt.v11i2.15402 | |
| Keywords | ||
| breaking bad news culture cross-cultura patients’ preferences ethics | ||
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This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License. |
How to Cite
1.
Barikani A, Negarandeh R, Ghasemi E. The patients’ preferences in breaking bad news: A scoping review. NPT. 2024;11(2):92-106.
