Exploring the self-Management strategies in people with multiple sclerosis
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Abstract
Background & Aim: People with multiple sclerosis (MS) face numerous physical and psychological problems and use multiple strategies to manage these problems to reduce its impact on their own lives. The aim of this study is to explore the self-management strategies in people with MS.
Methods & Materials: This study is a qualitative research with content analysis approach. Data were collected through semi-structured interviews with seven people with MS recruited from a rehabilitation clinic and the MS Support Community. Participants were selected through purposive sampling method. Data collection continued until data saturation. Trustworthiness criteria were considered to ensure the quality of findings. Data were analyzed using qualitative content analysis with conventional approach.
Results: Analysis of the data ultimately led to the emergence of “attempt to maintain independence” as the main theme referring to the self-management strategies in people with MS. Selfmanagement strategies the participants used in this study were grouped into seven categories: disease acceptance, information enhancement, change of lifestyle, developing psycho-emotional balance, environmental modifications, improving financial credits, and promoting capabilities.
Conclusion: People with MS use various self-management strategies for reducing their problems. Due to the nature of the disease, the use of self-management strategies can improve their control over illness. Understanding these needs and strategies helps health providers to provide better services to people with MS.
Shahvarughi-Farahani A, A'zimian M, Fal- lah-Pour M, Karimlou M. Evaluation of reli- ability and validity of the Persian version of Fatigue Severity Scale (FSS) among persons with multiple sclerosis. J Rehab 2013; 13(4): 84-91. [In Persian].
Coenen M, Basedow-Rajwich B, Konig N, Kesselring J, Cieza A. Functioning and disa- bility in multiple sclerosis from the patient perspective. Chronic Illn 2011; 7(4): 291-310.
Rae-Grant AD, Turner AP, Sloan A, Miller D, Hunziker J, Haselkorn JK. Self- management in neurological disorders: sys- tematic review of the literature and potential interventions in multiple sclerosis care. J Rehabil Res Dev 2011; 48(9): 1087-100.
Hirsche RC, Williams B, Jones A, Manns P. Chronic disease self-management for indi- viduals with stroke, multiple sclerosis and spinal cord injury. Disabil Rehabil 2011; 33(13-14): 1136-46.
Foster G, Taylor SJ, Eldridge SE, Ramsay J, Griffiths CJ. Self-management education programmes by lay leaders for people with chronic conditions. Cochrane Database Syst Rev 2007; (4): CD005108.
Stockl KM, Shin JS, Gong S, Harada AS, Solow BK, Lew HC. Improving patient self- management of multiple sclerosis through a disease therapy management program. Am J Manag Care 2010; 16(2): 139-44.
Lorig KR, Mazonson PD, Holman HR. Evi- dence suggesting that health education for self-management in patients with chronic ar- thritis has sustained health benefits while re- ducing health care costs. Arthritis Rheum 1993; 36(4): 439-46.
Lorig KR, Holman H. Self-management ed- ucation: history, definition, outcomes, and mechanisms. Ann Behav Med 2003; 26(1): 1-7.
Knaster E, Yorkston K, Johnson K, McMul- len K, Ehde D. Perspectives on Self- Management in Multiple Sclerosis. Int J MS Care 2011; 13(3): 146-52.
Courts NF, Buchanan EM, Werstlein PO. Focus groups: the lived experience of partic- ipants with multiple sclerosis. J Neurosci Nurs 2004; 36(1): 42-7.
Schreier M. Qualitative content analysis in practice. New York, NY: Sage Publications; 2012.
Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res 2005; 15(9): 1277-88.
Elo S, Kyngas H. The qualitative content analysis process. J Adv Nurs 2008; 62(1): 107-15.
Taherkhani S, Negarandeh R, Simbar M, Ahmadi F. Iranian women's experiences with intimate partner violence: A qualitative study. Health Promot Perspect 2014; 4(2): 230-9.
Nakagawa-Kogan H, Garber A, Jarrett M, Egan KJ, Hendershot S. Self-management of hypertension: predictors of success in dias- tolic blood pressure reduction. Res Nurs Health 1988; 11(2): 105-15.
Clark N, Becker M, Janz NK, Lorig K, Rakowski W, Anderson L. Self-management of chronic disease by older adults. J Aging Health 1991; 3(1): 3-27.
Finlayson M, van Denend T, Hudson E. Ag- ing with multiple sclerosis. J Neurosci Nurs 2004; 36(5): 245-51, 259.
Stuifbergen AK, Becker H, Blozis S, Tim- merman G, Kullberg V. A randomized clini- cal trial of a wellness intervention for wom- en with multiple sclerosis. Arch Phys Med Rehabil 2003; 84(4): 467-76.
Barlow JH, Turner AP, Wright CC. A ran- domized controlled study of the arthritis self-management programme in the UK. Health Educ Res 2000; 15(6): 665-80.
Wassem R, Dudley W. Symptom manage- ment and adjustment of patients with multiple sclerosis: a 4-year longitudinal intervention study. Clin Nurs Res 2003; 12(1): 102-17.
Stuifbergen AK, Rogers S. The experience of fatigue and strategies of self-care among persons with multiple sclerosis. Appl Nurs Res 1997; 10(1): 2-10.
Lorig K. Living a healthy life with chronic conditions. Boulder, CO: Bull Publishing Company; 2000.
Vanage SM, Gilbertson KK, Mathiowetz V. Effects of an energy conservation course on fatigue impact for persons with progressive multiple sclerosis. Am J Occup Ther 2003; 57(3): 315-23.
Mitchell AJ, Benito-Leon J, Gonzalez JM, Rivera-Navarro J. Quality of life and its as- sessment in multiple sclerosis: integrating physical and psychological components of wellbeing. Lancet Neurol 2005; 4(9): 556-66.
Harvey IS, Silverman M. The role of spirit- uality in the self-management of chronic ill- ness among older African and whites. J Cross Cult Gerontol 2007; 22(2): 205-20.
Mathiowetz V, Matuska KM, Murphy ME. Efficacy of an energy conservation course for persons with multiple sclerosis. Arch Phys Med Rehabil 2001; 82(4): 449-56.
Scherer MJ. Outcomes of assistive technol- ogy use on quality of life. Disabil Rehabil 1996; 18(9): 439-48.
McLellan AT. Have we evaluated addiction treatment correctly? Implications from a chronic care perspective. Addiction 2002; 97(3): 249-52.
Robert Wood Johnson Foundation. Chronic conditions: making the case for ongoing care [Online]. [cited 2004 Sep]; Available from: URL: http://www.partnershipforsolutions.org/DM S/files/chronicbook2004.pdf
Schoen C, Osborn R, How SK, Doty MM, Peugh J. In chronic condition: experiences of patients with complex health care needs, in eight countries, 2008. Health Aff (Mill- wood) 2009; 28(1): w1-16.
Lorig K. Self-management education: more than a nice extra. Med Care 2003; 41(6): 699-701.
Plow MA, Finlayson M, Rezac M. A scop- ing review of self-management interventions for adults with multiple sclerosis. PM R 2011; 3(3): 251-62.
| Files | ||
| Issue | Vol 2 No 3 (2015): Summer | |
| Section | Original Article(s) | |
| Keywords | ||
| self-management multiple-sclerosis chronic illness | ||
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