Immersing in problems: Challenges of women living with the husband on hemodialysis
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Abstract
Background & Aim: The caregivers of hemodialysis patients experience a heavy caregiving burden. More caregiving pressure and burden has been reported of the women than men insofar as they are encountered with more physical and psychological problems. This paper explores the challenges faced by women living with husband on hemodialysis.
Methods & Materials: The study followed a conventional content analysis method. The participants were selected through purposive sampling method in hospitals of Shahid Beheshti University of Medical Sciences, Tehran, Iran, in 2017-2018. The first author performed semi-structured, individualized interviews with 14 participants.
Results: By analyzing the data, the main category "Immersing in problems" was extracted with two following categories: 1- Inadequate support network (subcategories: inadequate informational support, inadequate instrumental support, inadequate emotional support) and 2- Difficult coexistence with problems (subcategories: role overload, worry and anxiety, fear and hope for the future, suffering of frequent dialyses).
Conclusion: The findings of the study showed that women living with the husband on hemodialysis have been encountered with challenges and numerous stressing factors in the course of caregiving. Given the challenges experienced by participants, telenursing and community health nurses can play an important role in eliminating the many problems of hemodialysis patients and their caregivers.
1. Ye JJ, Zhou TB, Zhang YF, Wang Q, Su YY, Tang JM, Li HY. Levels of vitamin D receptor and CYP24A1 in patients with end-stage renal disease. African health sciences. 2016;16(2):462-7.
2. Elzorkany KM, Zahran A. Hepatitis C virus status in hemodialysis patients in Menoufia Government, Egypt, five years apart: Do we have any improvement?. Saudi Journal of Kidney Diseases and Transplantation. 2017 Sep 1;28(5):1126.
3. Shahgholian N, Yousefi H. Supporting hemodialysis patients: A phenomenological study. Iranian journal of nursing and midwifery research. 2015 Sep;20(5):626.
4. Zheng J, You LM, Lou TQ, Chen NC, Lai DY, Liang YY, Li YN, Gu YM, Lv SF, Zhai CQ. Development and psychometric evaluation of the Dialysis patient-perceived Exercise Benefits and Barriers Scale. International journal of nursing studies. 2010 Feb 1;47(2):166-80.
5. Ghane G, Farahani MA, Seyedfatemi N, Haghani H. The effect of supportive educative program on the quality of life in family caregivers of hemodialysis patients. Journal of Education and Health Promotion. 2017;6:80.
6. Marques FR, Botelho MR, Marcon SS, Pupulim JS. Coping strategies used by family members of individuals receiving hemodialysis. Texto & Contexto-Enfermagem. 2014 Dec;23(4):915-24.
7. Aboozadeh Gotabi K, Ghanbari Moghaddam A, Mohammadi M, Zarei F. The burden of family caregivers caring for older adults and its relationship with some factors. Nursing of the Vulnerable Journal. 2016;3(6):27-36.
8. Ashktorab T, Baghcheghi N, Seyedfatemi N, Baghestani A. Psychometric parameters of the Persian version of the BriefCOPE among wives of patients under hemodialysis. Medical journal of the Islamic Republic of Iran. 2017;31:20.
9. Salehi‐tali S, Ahmadi F, Zarea K, Fereidooni‐Moghadam M. Commitment to care: the most important coping strategies among family caregivers of patients undergoing haemodialysis. Scandinavian journal of caring sciences. 2018 Mar;32(1):82-91.
10. Habibzadeh H, Mohammadpour Y, Jafarizadeh H, Kiani P, Bahrechi A, Lak KH. A survey on quality of life in hemodialysis patient care givers. The Journal of Urmia Nursing and Midwifery Faculty. 2009;7(3):128-35.
11. Abbasi A, Asayesh H, Rahmani H, Shariati A, Hosseini S, Rouhi GH. The burden on cargivers from hemodialysis patients and related factors. Journal of Research Development in Nursing & Midwifery. 2011;8(1):26-33.
12. Revenson T, Griva K, Luszczynska A, Morrison V, Panagopoulou E, Vilchinsky N, Hagedoorn M. Caregiving in the illness context. Springer; 2016 Jan 26.
13. Faramarzi S, Homaie R, Izadi R. Efficacy of cognitive behavioral group training of life skills on mental health of women with handicapped spouses. Social Welfare Quarterly. 2011 Apr 15;11(40):217-35.
14. Koohestani HR, Baghcheghi N. The prevalence of depression among caregivers of stroke survivors and related factors in Arak. Iranian Journal of Epidemiology. 2012 Dec 15;8(3):66-72.
15. Thyme KE, Wiberg B, Lundman B, Graneheim UH. Qualitative content analysis in art psychotherapy research: Concepts, procedures, and measures to reveal the latent meaning in pictures and the words attached to the pictures. The Arts in Psychotherapy. 2013 Feb 1;40(1):101-7.
16. Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse education today. 2004 Feb 1;24(2):105-12.
17. Corbin J, Strauss A, Strauss AL. Basics of qualitative research: Sage; 2014.
18. Guba EG. Criteria for assessing the trustworthiness of naturalistic inquiries. Ectj. 1981 Jun 1;29(2):75.
19. Schreier M. Qualitative content analysis in practice. Sage Publications; 2012 Mar 5.
20. Washington KT, Meadows SE, Elliott SG, Koopman RJ. Information needs of informal caregivers of older adults with chronic health conditions. Patient Education and Counseling. 2011 Apr 1;83(1):37-44.
21. Lin CC, Han CY, Pan IJ. A qualitative approach of psychosocial adaptation process in patients undergoing long-term hemodialysis. Asian nursing research. 2015 Mar 1;9(1):35-41.
22. Eslami AA, Rabiei L, Abedi HA, Shirani M, Masoudi R. Coping skills of iranian family caregivers’in caretaking of patients undergoing haemodialysis: A qualitative study. Journal of Renal Care. 2016;42(3):162-71.
23. Mousavi Sardashti M, Keshavarz H, Ansari E, Hosseinpour K. Study of the Relationship of Emotional Support and Quality of Life of the Elderly in Shahr-e-Kord. Journal of Health System Research. 2014;10(1):58-66.
24. Turner J, Kelly B. Emotional dimensions of chronic disease. Western Journal of Medicine. 2000;172(2):124.
25. Williams LA, Graff JC, Wicks MN, Cowan PA, Williams LA, Graff JC, Wicks MN, Cowan PA, White-Means S, Tolley EA. Male Caregivers of Persons with End Stage Renal Disease: A Qualitative Study. Nephrology Nursing Journal. 2017 May 1;44(3): 234-42.
26. Rabiei L, Eslami AA, Abedi H, Masoudi R, Sharifirad GR. Caring in an atmosphere of uncertainty: perspectives and experiences of caregivers of peoples undergoing haemodialysis in Iran. Scandinavian journal of caring sciences. 2016 Sep;30(3):594-601.
27. Talebi M, Mokhtari Lakeh N, Rezasoltani P. Caregiver Burden in Caregivers of RenalF Patients under Hemodialysis. Journal of Holistic Nursing And Midwifery. 2016;26(2):59-68.
28. Hequembourg A, Brallier S. Gendered stories of parental caregiving among siblings. Journal of Aging Studies. 2005;19(1):53-71.
29. Wilkes L, Cioffi J, Cummings J, Warne B, Harrison K. Clients with chronic conditions: community nurse role in a multidisciplinary team. Journal of Clinical Nursing. 2014;23(5-6):844-55.
30. Koohestani H, Baghcheghi N, Rezaei K, Abedi A, Seraji A, Zand S. Occupational violence in nursing students in arak, iran. Iranian Journal of Epidemiology. 2011;7(2):44-50.
31. Koohestani HR, Arabshahi SKS, Ahmadi F. The paradox of acceptance and rejection: the perception of healthcare professional students about mobile learning acceptance in iran university of medical sciences. Qualitative Research in Education. 2018;7(2):144-69.
32. Ericsson M, Angerud KH, Brannstrom M, Lawesson SS, Stromberg A, Thylen I. Interaction between tele-nurses and callers with an evolving myocardial infarction: Consequences for level of directed care. European journal of cardiovascular nursing: Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology. 2019:1474515119848195.
2. Elzorkany KM, Zahran A. Hepatitis C virus status in hemodialysis patients in Menoufia Government, Egypt, five years apart: Do we have any improvement?. Saudi Journal of Kidney Diseases and Transplantation. 2017 Sep 1;28(5):1126.
3. Shahgholian N, Yousefi H. Supporting hemodialysis patients: A phenomenological study. Iranian journal of nursing and midwifery research. 2015 Sep;20(5):626.
4. Zheng J, You LM, Lou TQ, Chen NC, Lai DY, Liang YY, Li YN, Gu YM, Lv SF, Zhai CQ. Development and psychometric evaluation of the Dialysis patient-perceived Exercise Benefits and Barriers Scale. International journal of nursing studies. 2010 Feb 1;47(2):166-80.
5. Ghane G, Farahani MA, Seyedfatemi N, Haghani H. The effect of supportive educative program on the quality of life in family caregivers of hemodialysis patients. Journal of Education and Health Promotion. 2017;6:80.
6. Marques FR, Botelho MR, Marcon SS, Pupulim JS. Coping strategies used by family members of individuals receiving hemodialysis. Texto & Contexto-Enfermagem. 2014 Dec;23(4):915-24.
7. Aboozadeh Gotabi K, Ghanbari Moghaddam A, Mohammadi M, Zarei F. The burden of family caregivers caring for older adults and its relationship with some factors. Nursing of the Vulnerable Journal. 2016;3(6):27-36.
8. Ashktorab T, Baghcheghi N, Seyedfatemi N, Baghestani A. Psychometric parameters of the Persian version of the BriefCOPE among wives of patients under hemodialysis. Medical journal of the Islamic Republic of Iran. 2017;31:20.
9. Salehi‐tali S, Ahmadi F, Zarea K, Fereidooni‐Moghadam M. Commitment to care: the most important coping strategies among family caregivers of patients undergoing haemodialysis. Scandinavian journal of caring sciences. 2018 Mar;32(1):82-91.
10. Habibzadeh H, Mohammadpour Y, Jafarizadeh H, Kiani P, Bahrechi A, Lak KH. A survey on quality of life in hemodialysis patient care givers. The Journal of Urmia Nursing and Midwifery Faculty. 2009;7(3):128-35.
11. Abbasi A, Asayesh H, Rahmani H, Shariati A, Hosseini S, Rouhi GH. The burden on cargivers from hemodialysis patients and related factors. Journal of Research Development in Nursing & Midwifery. 2011;8(1):26-33.
12. Revenson T, Griva K, Luszczynska A, Morrison V, Panagopoulou E, Vilchinsky N, Hagedoorn M. Caregiving in the illness context. Springer; 2016 Jan 26.
13. Faramarzi S, Homaie R, Izadi R. Efficacy of cognitive behavioral group training of life skills on mental health of women with handicapped spouses. Social Welfare Quarterly. 2011 Apr 15;11(40):217-35.
14. Koohestani HR, Baghcheghi N. The prevalence of depression among caregivers of stroke survivors and related factors in Arak. Iranian Journal of Epidemiology. 2012 Dec 15;8(3):66-72.
15. Thyme KE, Wiberg B, Lundman B, Graneheim UH. Qualitative content analysis in art psychotherapy research: Concepts, procedures, and measures to reveal the latent meaning in pictures and the words attached to the pictures. The Arts in Psychotherapy. 2013 Feb 1;40(1):101-7.
16. Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse education today. 2004 Feb 1;24(2):105-12.
17. Corbin J, Strauss A, Strauss AL. Basics of qualitative research: Sage; 2014.
18. Guba EG. Criteria for assessing the trustworthiness of naturalistic inquiries. Ectj. 1981 Jun 1;29(2):75.
19. Schreier M. Qualitative content analysis in practice. Sage Publications; 2012 Mar 5.
20. Washington KT, Meadows SE, Elliott SG, Koopman RJ. Information needs of informal caregivers of older adults with chronic health conditions. Patient Education and Counseling. 2011 Apr 1;83(1):37-44.
21. Lin CC, Han CY, Pan IJ. A qualitative approach of psychosocial adaptation process in patients undergoing long-term hemodialysis. Asian nursing research. 2015 Mar 1;9(1):35-41.
22. Eslami AA, Rabiei L, Abedi HA, Shirani M, Masoudi R. Coping skills of iranian family caregivers’in caretaking of patients undergoing haemodialysis: A qualitative study. Journal of Renal Care. 2016;42(3):162-71.
23. Mousavi Sardashti M, Keshavarz H, Ansari E, Hosseinpour K. Study of the Relationship of Emotional Support and Quality of Life of the Elderly in Shahr-e-Kord. Journal of Health System Research. 2014;10(1):58-66.
24. Turner J, Kelly B. Emotional dimensions of chronic disease. Western Journal of Medicine. 2000;172(2):124.
25. Williams LA, Graff JC, Wicks MN, Cowan PA, Williams LA, Graff JC, Wicks MN, Cowan PA, White-Means S, Tolley EA. Male Caregivers of Persons with End Stage Renal Disease: A Qualitative Study. Nephrology Nursing Journal. 2017 May 1;44(3): 234-42.
26. Rabiei L, Eslami AA, Abedi H, Masoudi R, Sharifirad GR. Caring in an atmosphere of uncertainty: perspectives and experiences of caregivers of peoples undergoing haemodialysis in Iran. Scandinavian journal of caring sciences. 2016 Sep;30(3):594-601.
27. Talebi M, Mokhtari Lakeh N, Rezasoltani P. Caregiver Burden in Caregivers of RenalF Patients under Hemodialysis. Journal of Holistic Nursing And Midwifery. 2016;26(2):59-68.
28. Hequembourg A, Brallier S. Gendered stories of parental caregiving among siblings. Journal of Aging Studies. 2005;19(1):53-71.
29. Wilkes L, Cioffi J, Cummings J, Warne B, Harrison K. Clients with chronic conditions: community nurse role in a multidisciplinary team. Journal of Clinical Nursing. 2014;23(5-6):844-55.
30. Koohestani H, Baghcheghi N, Rezaei K, Abedi A, Seraji A, Zand S. Occupational violence in nursing students in arak, iran. Iranian Journal of Epidemiology. 2011;7(2):44-50.
31. Koohestani HR, Arabshahi SKS, Ahmadi F. The paradox of acceptance and rejection: the perception of healthcare professional students about mobile learning acceptance in iran university of medical sciences. Qualitative Research in Education. 2018;7(2):144-69.
32. Ericsson M, Angerud KH, Brannstrom M, Lawesson SS, Stromberg A, Thylen I. Interaction between tele-nurses and callers with an evolving myocardial infarction: Consequences for level of directed care. European journal of cardiovascular nursing: Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology. 2019:1474515119848195.
| Files | ||
| Issue | Vol 6 No 4 (2019): Autumn | |
| Section | Original Article(s) | |
| DOI | https://doi.org/10.18502/npt.v6i4.1941 | |
| Keywords | ||
| hemodialysis caregiving women challenge | ||
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How to Cite
1.
Baghcheghi N, Ashktorab T, Seyedfatemi N. Immersing in problems: Challenges of women living with the husband on hemodialysis. NPT. 2019;6(4):190-201.
