Psychosocial effects of systemic sclerosis: A case report

  • Esra Oksel Mail Department of Internal Medicine Nursing, Faculty of Nursing, Ege University, Izmir, Turkey
systemic sclerosis; scleroderma; psychosocial effects


“…Sit down. Look at the TV. Move slowly. Wait for death.”

Background & Aim: Systemic sclerosis or scleroderma is a rare chronic connective tissue disease included among autoimmune rheumatic diseases. The disease affects many organs and the organ system. It also has multiple effects on the patient’s individual life.  In care management, in addition to the physical effects of the disease, its emotional, psychological and social influences must also be considered and managed. The present study aimed to touch the psychosocial aspect of scleroderma and the unseen effects of the disease are presented over a case study.

Case Report: 52-year-old, female patient, married with two children. Her self-evaluation after the diagnosis of the disease, she explained that her physical state, social reltionships, economic condition, domestic relations and mood were affected by the disease negatively.

Conclusion: In managing psychosocial problems in nursing care, it is necessary to consider that each patient has different needs, perspectives on life, future expectations and coping mechanisms. The present study reveals the unknown face scleroderma, its psychosocial effects, from a patient’s point of view. 


1. Špiritović M. Biopsychosocial Aspects in Management of Scleroderma Patients. In: New Insights into Systemic Sclerosis. Tomcik M, editor. Intechopen Publishing, London, 2019. DOI: Available from:
2. Ryan S. The Psychological Aspects of Rheumatic Disease. In: Rheumatology Nursing: A Creative Approach. Hill J, editor. Whurr Publishers Limited (a subsidiary of John Wiley & Sons Ltd), England, 2006, p: 151-172.
3. Çakır N, Pamuk ÖN, Derviş E, İmeryüz N, Uslu H, Benian Ö, Elelçi E, Erdem G, Sarvan FO, Şenocak M. The prevalences of some rheumatic diseases in western Turkey: Havsa study. Rheumatology international. 2012 Apr 1;32(4):895-908.
4. Ranque B, Mouthon L. Geoepidemiology of systemic sclerosis. Autoimmunity reviews. 2010 Mar 1;9(5):A311-8.
5. Tokem Y, Özel F. Skleoderma ve Hemşirelik Bakımı. Ege Üniversitesi Hemşirelik Dergisi, 2011;27(2): 79-88.
6. Bayındır SK, Biçer S. Holistik Hemşirelik Bakımı-Holistic Nursing Care. İzmir Kâtip Çelebi Üniversitesi Sağlık Bilimleri Fakültesi Dergisi 2019; 4(1): 25-29.
7. Yılmaz M. Kronik Hastalıklarda Psikososyal Faktörler. In: Temel İç Hastalıkları Hemşireliği ve Farklı Boyutlarıyla Kronik Hastalıklar. Ovayolu N, Ovayolu O, editors. Çukurova Nobel Tıp Kitabevi. Adana 2017, p: 600-604.
8. Sierakowska M, Sierakowski S, Lewko J. Nursing problems of patients with systemic sclerosis.Advances in Medical Sciences; 2007, 52 (suppl. 1), 147-152.
9. Battle LH, Aiken LI. Scleroderma: Managing patient care. Nursing made Incredibly Easy. 2018 Jan 1;16(1):21-4.
10. Kwakkenbos L, Delisle VC, Fox RS, Gholizadeh S, Jewett LR, Levis B, Milette K, Mills SD, Malcarne VL, Thombs BD. Psychosocial aspects of scleroderma. Rheumatic Disease Clinics. 2015 Aug 1;41(3):519-28.
11. Thombs BD, Van Lankveld W, Bassel M, Baron M, Buzza R, Haslam S, Haythornthwaite JA, Hudson M, Jewett LR, Knafo R, Kwakkenbos L. Psychological health and well‐being in systemic sclerosis: state of the science and consensus research agenda. Arthritis care & research. 2010 Aug;62(8):1181-9.
12. Oksel E, Gündüzoğlu NÇ. Investigation of life experiences of women with scleroderma. Sexuality and Disability. 2014 Mar 1;32(1):15-21.
13. Moots RJ. Manifestations of systemic sclerosis necessitate a holistic approach to patient care: a case report. Musculoskeletal care. 2010 Sep;8(3):164-7.
How to Cite
Oksel E. Psychosocial effects of systemic sclerosis: A case report. NPT. 7(3):165-168.
Case Report(s)