IGestSaúde a mobile application for the self-management of symptoms associated with chemotherapy treatment: Development protocol
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Abstract
Background & Aim: People undergoing chemotherapy treatment of an oncologic disease refer to the need to promote the process of self-management of the disease and the symptoms associated with treatment. This study aims to describe the development protocol of a mobile application to support the self-management of symptoms associated with chemotherapy treatment, the IGestSaúde.
Methods & Materials: The research is divided into six stages, using an exploratory/descriptive pilot study conducted over 36 months. The stages include research and fundamentals, development, validation of therapeutic guidelines, field study, technological development, implementation, and mobile application evaluation.
Discussion: The project will monitor and improve patients' compliance to chemotherapy, to prevent patients’ complications through preventive indications for self-care, and to improve patients' responses to uncontrolled symptoms or complications.
Conclusion: Mobile applications can be considered a viable and effective means for self-management of complications associated with chemotherapy treatment, supported by scientific evidence and these people's specific needs.
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12. Magalhães B, Fernandes C, Santos C, Martínez-Galiano JM. The Use of Mobile Applications for Managing Care Processes During Chemotherapy Treatments: A Systematic Review. Cancer nursing. 2020; https://doi.org/10.1097/NCC.0000000000000823.
13. Portelli P, Eldred C. A quality review of smartphone applications for the management of pain. British journal of pain. 2016; 10(3):135–40. https://doi.org/10.1177/2049463716638700
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15. Eastway J, Lizarondo L. Experiences of adult patients with chronic non-communicable disease using electronic personal health records for self-management: a qualitative systematic review protocol. JBI database of systematic reviews and implementation reports. 2019;17(11):2334–42. https://doi.org/10.11124/JBISRIR-2017-003941
16. NCI-National Cancer Institute. Common Terminology Criteria for Adverse Events (CTCAE), Version 5.0.2017. https://ctep.cancer.gov/protocoldevelopment/electronic_applications/docs/ctcae_v5_quick_reference_5x7.pdf.
17. Fortney J, Burgess J, Bosworth H, Booth B, Kaboli P. A Re-conceptualization of Access for 21st Century Healthcare. JGIM: Journal of General Internal Medicine. 2011;26:639–47. https://doi.org/10.1007/s11606-011-1806-6
18. Azar KMJ, Koliwad S, Poon T, Xiao L, Lv N, Griggs R, et al. The Electronic CardioMetabolic Program (eCMP) for Patients With Cardiometabolic Risk: A Randomized Controlled Trial. Journal of medical Internet research. 2016;18(5):e134. https://doi.org/10.2196/jmir.5143
19. Badawy SM, Kuhns LM. Economic Evaluation of Text-Messaging and Smartphone-Based Interventions to Improve Medication Adherence in Adolescents with Chronic Health Conditions: A Systematic Review. JMIR mHealth and uHealth. 2016;4(4):e121.
20. Becker D. What’s App? An Overview of Medical Mobile Apps. Journal of Electronic Resources in Medical Libraries. 2018;15(3/4):165–71. https://doi.org/10.1080/15424065.2018.1554465
21. Dawson RM, Felder TM, Donevant SB, McDonnell KK, Card EB 3rd, King CC, et al. What makes a good health “app”? Identifying the strengths and limitations of existing mobile application evaluation tools. Nursing inquiry. 2020;27(2):e12333. https://doi.org/10.1111/nin.12333
22. Collado-Borrell R, Escudero-Vilaplana V, Ribed-Sánchez A, Ibáñez-García S, Herranz-Alonso A, Sanjurjo-Sáez M. Smartphone applications for cancer patients; what we know about them? Farmacia hospitalaria : organo oficial de expresion cientifica de la Sociedad Espanola de Farmacia Hospitalaria. 2016;40(1):25–35.https://doi.org/10.7399/fh.2016.40.1.8993
23. Nouri R, R Niakan Kalhori S, Ghazisaeedi M, Marchand G, Yasini M. Criteria for assessing the quality of mHealth apps: a systematic review. Journal of the American Medical Informatics Association : JAMIA. 2018;25(8):1089–98. https://doi.org/10.1093/jamia/ocy050
https://doi.org/10.12707/RIV16050
2. Jiang Y, Wickersham KE, Zhang X, Barton DL, Farris KB, Krauss JC, Harris MR. Side Effects, Self-Management Activities, and Adherence to Oral Anticancer Agents. Patient Prefer Adherence. 2019;13 (13):2243-52. https://doi.org/10.2147/PPA.S224496
3. Given BA, Spoelstra SL, Grant M. The challenges of oral agents as antineoplastic treatments. Seminars in oncology nursing. 2011;27(2):93–103. https://doi.org/10.1016/j.soncn.2011.02.003
4. Magalhães B, Fernandes C, Santos C, Lima L, Miguel Martínez-Galiano J. Autogestão das complicações associadas ao tratamento de quimioterapia: uma scoping review. Journal Health NPEPS. 2019;4(2):370–404. https://doi.org/10.30681/252610103722
5. Wanchai A, Armer JM. A systematic review association of reflexology in managing symptoms and side effects of breast cancer treatment. Complementary therapies in clinical practice. 2020;38:101074.
https://doi.org/10.1016/j.ctcp.2019.101074
6. Ward Sullivan C, Leutwyler H, Dunn LB, Miaskowski C. A review of the literature on symptom clusters in studies that included oncology patients receiving primary or adjuvant chemotherapy. Journal of clinical nursing.;27(3–4):516–45. https://doi.org/10.1111/jocn.14057
7. Bennion AE, Molassiotis A. Qualitative research into the symptom experiences of adult cancer patients after treatments: a systematic review and meta-synthesis. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer. 2013;21(1):9–25. https://doi.org/10.1007/s00520-012-1573-x
8. Rodrigues NC, Santos CS, Rodrigues MMG, Henriques MA. Effectiveness of nursing interventions in the postoperative recovery of gastric cancer patients: a systematic literature review. Revista de Enfermagem Referência. 2016;4(11):111–9. https://doi.org/10.12707/RIV16050
9. Jaenicke C, Greenwood D, Nelson K, Klein M, Foss B, Carson L, et al. Use of Mobile Messaging System for Self-Management of Chemotherapy Symptoms in Patients with Advanced Cancer. Federal practitioner : for the health care professionals of the VA, DoD, and PHS. 2019;36(Suppl 5):S54–7.
10. Hamine S, Gerth-Guyette E, Faulx D, Green BB, Ginsburg AS. Impact of mHealth chronic disease management on treatment adherence and patient outcomes: a systematic review. Journal of medical Internet research. 2015;17(2):e52. https://doi.org/10.2196/jmir.3951
11. Absolom K., Gibson A., Velikova G.. Engaging Patients and Clinicians in Online Reporting of Adverse Effects During Chemotherapy for Cancer: The eRAPID System. Medical Care.2019; 57: S59–S65. https://doi.org/10.1097/MLR.0000000000001085
12. Magalhães B, Fernandes C, Santos C, Martínez-Galiano JM. The Use of Mobile Applications for Managing Care Processes During Chemotherapy Treatments: A Systematic Review. Cancer nursing. 2020; https://doi.org/10.1097/NCC.0000000000000823.
13. Portelli P, Eldred C. A quality review of smartphone applications for the management of pain. British journal of pain. 2016; 10(3):135–40. https://doi.org/10.1177/2049463716638700
14. Knoerl R, Hong F, Blonquist T, Berry D. Impact of Electronic Self-Assessment and Self-Care Technology on Adherence to Clinician Recommendations and Self-Management Activity for Cancer Treatment-Related Symptoms: Secondary Analysis of a Randomized Controlled Trial. JMIR cancer. 2019;5(1):e11395. https://doi.org/10.2196/11395
15. Eastway J, Lizarondo L. Experiences of adult patients with chronic non-communicable disease using electronic personal health records for self-management: a qualitative systematic review protocol. JBI database of systematic reviews and implementation reports. 2019;17(11):2334–42. https://doi.org/10.11124/JBISRIR-2017-003941
16. NCI-National Cancer Institute. Common Terminology Criteria for Adverse Events (CTCAE), Version 5.0.2017. https://ctep.cancer.gov/protocoldevelopment/electronic_applications/docs/ctcae_v5_quick_reference_5x7.pdf.
17. Fortney J, Burgess J, Bosworth H, Booth B, Kaboli P. A Re-conceptualization of Access for 21st Century Healthcare. JGIM: Journal of General Internal Medicine. 2011;26:639–47. https://doi.org/10.1007/s11606-011-1806-6
18. Azar KMJ, Koliwad S, Poon T, Xiao L, Lv N, Griggs R, et al. The Electronic CardioMetabolic Program (eCMP) for Patients With Cardiometabolic Risk: A Randomized Controlled Trial. Journal of medical Internet research. 2016;18(5):e134. https://doi.org/10.2196/jmir.5143
19. Badawy SM, Kuhns LM. Economic Evaluation of Text-Messaging and Smartphone-Based Interventions to Improve Medication Adherence in Adolescents with Chronic Health Conditions: A Systematic Review. JMIR mHealth and uHealth. 2016;4(4):e121.
20. Becker D. What’s App? An Overview of Medical Mobile Apps. Journal of Electronic Resources in Medical Libraries. 2018;15(3/4):165–71. https://doi.org/10.1080/15424065.2018.1554465
21. Dawson RM, Felder TM, Donevant SB, McDonnell KK, Card EB 3rd, King CC, et al. What makes a good health “app”? Identifying the strengths and limitations of existing mobile application evaluation tools. Nursing inquiry. 2020;27(2):e12333. https://doi.org/10.1111/nin.12333
22. Collado-Borrell R, Escudero-Vilaplana V, Ribed-Sánchez A, Ibáñez-García S, Herranz-Alonso A, Sanjurjo-Sáez M. Smartphone applications for cancer patients; what we know about them? Farmacia hospitalaria : organo oficial de expresion cientifica de la Sociedad Espanola de Farmacia Hospitalaria. 2016;40(1):25–35.https://doi.org/10.7399/fh.2016.40.1.8993
23. Nouri R, R Niakan Kalhori S, Ghazisaeedi M, Marchand G, Yasini M. Criteria for assessing the quality of mHealth apps: a systematic review. Journal of the American Medical Informatics Association : JAMIA. 2018;25(8):1089–98. https://doi.org/10.1093/jamia/ocy050
| Files | ||
| Issue | Vol 8 No 2 (2021): Spring | |
| Section | Original Article(s) | |
| DOI | https://doi.org/10.18502/npt.v8i2.5126 | |
| Keywords | ||
| mobile application; chemotherapy; self-management | ||
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This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License. |
How to Cite
1.
Sílvia Fernandes C, Magalhães B, Santos C, Galiano J. IGestSaúde a mobile application for the self-management of symptoms associated with chemotherapy treatment: Development protocol. NPT. 2020;8(2):146-154.
